Sophie had her follow up MRI last Thursday at Blank. It was a rough go... before the MRI even began. We were there for over 5 hours and our poor babe was stuck like a pin cushion. After 3 tries to put in her IV with no success and a wailing, terrified child, I remembered what a good friend had shared with me. We requested that the pediatric transport team be called in to do her IV. While our nurses were wonderful, the pediatric transport team only works with children and they are highly specialized as they are based in the ER. After one failed attempt by the pediatric transport team, they said they were going to have to put the IV in her head. Sick to my stomach and crying at that point, the other team member tried and succeeded in putting the IV in her other foot. Yay for Scott! We were able to stay with her while they administered the anesthesia (unlike at Mercy). Jason and I decided we weren't sure we liked that any better... it is very unnerving watching your child be put under. Once again though, she was our warrior and did wonderful through the whole procedure. She even woke up without much fuss and took a full bottle... as you know this is unheard of these days for Miss Soph! I guess we just need to make her fast from 6 AM on and then she'll eat at 4 PM :)We were told that the pediatric radiologist would have her report completed by that evening and that we should hear from our doctors the following day with the initial read. This was much sooner than we had anticipated and we were obviously anxious, but terrified at the thought of what this MRI could determine for our little girl. The call from our pediatrician came Friday morning while one of Sophia's home therapists was here. Too nervous to answer my cell I intentionally missed the call, but then they immediately called the house phone. I knew I needed to answer and Heidi, Soph's OT, encouraged me to do so. I think I literally held my breath once I said hello. She cut right to the chase and said that Sophia's MRI came back with NO CHANGE! This is what we have been praying for! So, while there were tears, they were tears of joy. We then heard from Sophia's neurologist at Blank on Monday confirming the results of the scan. She said that this indicates that the injury appears static-- meaning no change which leads us to even greater hope that her condition is not progressive. The MRI was also sent to the neurologist at Mayo and to Dr. Ramsey, her physiatrist. We actually meet with Dr. Ramsey next week so we will be anxious to visit with him and get his opinions as well.
Once again, we thank you for all of the prayers said on Sophia's behalf. God is good ... prayers have been answered!
Other news:
Sophia continues to do well in her therapies. She was recently cast for SMOs (ankle braces) for standing support. We should get those in the next few weeks. Sophia will be getting her first walker in January. Because she is still not crawling, we want to give her a venue for mobility. Mobility at this age is crucial for continued cognitive development. This smarty pants continues to impress us daily with what she has learned and all that she does! We are SO very proud of her!
No comments:
Post a Comment